Let’s talk about phenylketonuria and bad mood

I was browsing on some Phenylketonuria Facebook groups, looking for inspiration, when I came across that question: what is the worst thing you've been told about phenylketonuria? I can tell you that all kinds of things came out, funny and less funny! But one answer in particular interested me. "Your phenylalanine levels must be high … Lire la suite Let’s talk about phenylketonuria and bad mood

The Importance of Diet for Life

This text was published in the magazine “News & Views | Issue 158” and is written by Suzanne Ford, RD (NSPKU) and Dr Ben Green, PhD., Medical Affairs Research Advisor (Nutricia). There are many helpline queries about diet for life – this article explains a little bit about what is now known about phenylalanine and … Lire la suite The Importance of Diet for Life

Pregnancy and PKU

On this International Women's Day, I would like to give the microphone, or rather the pencil, to a member of our social media community who wrote an article about her pregnancy experience while managing the difficulties of Phenylketonuria. We are both hopeful that this will inspire and confidence to many women and/or couples living with … Lire la suite Pregnancy and PKU

The Wind of Change Blows on the « PCU Quebec » Website!

We are now in 2017 and the Rare Disease Day is fast approaching! It will indeed take place on February 28th. Since my goal has always been to present phenylketonuria in a positive light and to as many people as possible, I decided to make some changes in my information sharing tactics. With this in … Lire la suite The Wind of Change Blows on the « PCU Quebec » Website!

BLT without B

I do not know anyone who does not like bacon. On the other hand, people living with phenylketonuria do not have the chance to enjoy it at lunch or even in these famous sandwiches BLT - bacon, lettuce, tomato, for the intimates. However, when I visited a few vegetarian and vegan restaurants in Montreal, I had the … Lire la suite BLT without B

Phenylketonuria: Is it a Positive or a Negative Thing?

This morning, I was tempted to give you a reflection after seeing a question on a Facebook group. I subscribe to a few Pages and groups that deal with phenylketonuria and on one of them, someone asked a simple question, but it raised passions. What is the thing you prefer with having PKU? Personally, I think … Lire la suite Phenylketonuria: Is it a Positive or a Negative Thing?