Spice things up by inviting Italy into the kitchen

One of the challenges you face when you have phenylketonuria is to constantly reinvent yourself in the kitchen. And it's not easy! We are very limited in the foods we can eat, so it's easy to fall into the habit of eating the same thing on a regular basis. This is even more true when … Lire la suite Spice things up by inviting Italy into the kitchen

The most convenient gift

Having phenylketonuria means dealing with several dietary peculiarities. First for parents, who must diligently follow their children's low-protein diet until they become teenagers. Then, for the young phenylketonuric who will inevitably have to take charge and fend for himself in the kitchen. This is why the most practical gift my mother gave me was being … Lire la suite The most convenient gift

Now is the time to attend the annual ESPKU conference

This year, due to the situation created by COVID-19, the organizers of the European annual ESPKU conference have decided to broadcast it on the Internet on Sunday, November 1, 2020! Now is the time to attend it, free of travel costs, live from your home. However, note that it will start very early in Quebec, … Lire la suite Now is the time to attend the annual ESPKU conference

You are hungry? There is a trick.

Probably the biggest problem a person with phenylketonuria has to deal with is hunger. Why? One of the things that contributes the most to feelings of fullness is protein. Unfortunately, this is also exactly what we should avoid as much as possible. Take a moment to think about this. It is 3 or 4 pm … Lire la suite You are hungry? There is a trick.

TEMPLE, a tool that will reassure you

I’ve had the chance to become a father 16 months ago. So I understand now that even before birth, this little being takes all our attention and that we only want one thing : to keep them perfectly healthy and safe at all times. Unlike me, my daughter does not have phenylketonuria, but I am … Lire la suite TEMPLE, a tool that will reassure you

These are not chicken wings

What's great nowadays is the multitude of products for vegetarians and vegans invading grocery stores. Although these are not always suitable for phenylketonuria - several products have a very large amount of protein - we are sometimes lucky enough to come across a little delight which, for our pleasure, will contain very little protein. This … Lire la suite These are not chicken wings

How do I cope with phenylketonuria with the COVID-19 situation

We are living in very difficult times right now and it is essential to stick together (from a distance) and stay united. Thanks to the internet and technology, we can do it and stay in touch. How has the current pandemic affected phenylketonurics and their families? Personally, I have not noticed any particular impact that … Lire la suite How do I cope with phenylketonuria with the COVID-19 situation

Technology for phenylketonuria

Conducting blood tests has never been a simple matter for me. In Quebec, it is not possible to obtain phenylalanine levels weekly. At best, you can have a monthly follow-up that requires to travel to the clinic for a blood test, then wait several weeks to get a result. However, it would be so motivating … Lire la suite Technology for phenylketonuria

Back to CanPKU’s PKU Quebec Day

A few weeks ago, CanPKU members contacted me to participate as a speaker in the PKU Québec day, which was held on October 26th in Quebec City. I obviously accepted with eagerness... then, I began to think. What was I going to talk about? I am not a scientist, I do not test new products, … Lire la suite Back to CanPKU’s PKU Quebec Day

Phenylketonuria from a photographer’s perspective

I remember when I was young and I had to be stung on the finger for a blood sample. It was not particularly fun! It was probably the moment I dreaded the most when I had to go to the hospital. Indeed, as I have always been very sociable, it was always with pleasure that … Lire la suite Phenylketonuria from a photographer’s perspective